Rick Santorum holds his daughter Isabella before announcing he is entering the Republican presidential race, on the steps of the Somerset County Courthouse in Somerset, Pa. Santorum canceled his morning campaign events, Sunday, Jan. 29, 2012, and planned to spend time with his hospitalized daughter, Bella. Isabella Santorum has Trisomy 18, a genetic condition caused by the presence of all or part of an extra 18th chromosome.
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And yet when you leave Hitler and Satan aside, there is something admirable about Santorum's near Tourettic insistence on bringing up issues no one else wants to talk about. His position on education--that parents need to spend a lot more time supervising their children's schooling--draws stifled groans from the overworked parents in his audiences, but he's right: parents know best how their children learn. His emphasis on the importance of intact families is undoubtedly correct as well; every major study since the 1960s has shown the disaster that results from out-of-wedlock births. Even Santorum's use of prenatal testing raises uncomfortable issues for many people. It was a sonogram that helped determine that the Santorums' son Gabriel needed microsurgery in the womb to clear his bladder. Rick and Karen decided to fight for Gabriel's life, which nearly cost Karen her own, and they passionately embraced the child during his two hours on earth. They have spent the past three years caring for their daughter Isabella, whose genetic defect, trisomy 18, is an early-death sentence. "Almost 100% of trisomy 18 children are encouraged to be aborted," Santorum told Schieffer.
I am haunted by the smiling photos I've seen of Isabella with her father and mother, brothers and sisters. No doubt she struggles through many of her days--she nearly died a few weeks ago--but she has also been granted three years of unconditional love and the ability to smile and bring joy. Her tenuous survival has given her family a deeper sense of how precious even the frailest of lives are.
All right, I can hear you saying, the Santorum family's course may be admirable, but shouldn't we have the right to make our own choices? Yes, I suppose. But I also worry that we've become too averse to personal inconvenience as a society--that we're less rigorous parents than we should be, that we've farmed out our responsibilities, especially for the disabled, to the state--and I'm grateful to Santorum for forcing on me the discomfort of having to think about the moral implications of his daughter's smile.
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