Miracle Drug: Only $350,000 a Year

CEREDASE, A BREAKTHROUGH TREATMENT for the crippling and sometimes fatal , genetic disorder called Gaucher's disease, is changing lives, even saving them -- but not always making them better. For Jeanne Rogal, 29, of Harrisburg, Pennsylvania, Ceredase has reduced the pain from her crumbling bones, removed the lipid deposits choking her liver, and restored her energy so she can enjoy life again. But with it comes a crushing financial burden: Ceredase can cost up to $350,000 for a year's treatment.

Rogal has already exhausted one health-insurance policy and is whittling down a second. Although Medicaid pays part of the cost of...

Want the full story?

Subscribe Now

Subscribe
Subscribe

Get TIME the way you want it

  • One Week Digital Pass — $4.99
  • Monthly Pay-As-You-Go DIGITAL ACCESS$2.99
  • One Year ALL ACCESSJust $30!   Best Deal!
    Print Magazine + Digital Edition + Subscriber-only Content on TIME.com

Learn more about the benefits of being a TIME subscriber

If you are already a subscriber sign up — registration is free!